“I always like to say that I may have Long QT, but Long QT does not and will not ever have me”. I refuse to be defined by Long QT or any of my other health challenges. Despite everything I’ve been through, my life motto is that I want to live, truly live my life, not just survive.
Tag Archives: mom
The Novel Coronavirus: Through the Eyes of a Vulnerable Rare Disease Patient
For many people, this novel Coronavirus will turn out to be comparable to the regular common cold or flu. The majority of cases are mild in young, otherwise healthy people. However, please think of people like my family when you make your decisions in the coming days. Just because you are not the one atContinue reading “The Novel Coronavirus: Through the Eyes of a Vulnerable Rare Disease Patient”
The Rare Wanderer 