“I always like to say that I may have Long QT, but Long QT does not and will not ever have me”. I refuse to be defined by Long QT or any of my other health challenges. Despite everything I’ve been through, my life motto is that I want to live, truly live my life, not just survive.
Tag Archives: diagnosis
Behind the Rare (About Me)
I am a passionate writer, student, Girl Guide, volunteer, advocate for diversity and inclusion, patient advocate, and a lover of travel. I dream of becoming a genetic counsellor. I also happen to have 3 rare diseases. I am the rare wanderer. I refuse to let my conditions stop me from living my life the bestContinue reading “Behind the Rare (About Me)”
