“As Alexis Holmgren stared up at the Northern Lights that danced miles above her outside Yellowknife, she was suddenly overwhelmed by everything she had overcome so far in her young life to get there. ‘It seems funny to think that colours in the sky can be so meaningful, but it definitely was for me, I was just standing there in the cold.. and I could see the beauty of the sky. It was honestly something that, at one point, I wasn’t sure if I’d live to see.’”
Tag Archives: chronic pain
Patient Journey Feature: LQT Theraputics
“I always like to say that I may have Long QT, but Long QT does not and will not ever have me”. I refuse to be defined by Long QT or any of my other health challenges. Despite everything I’ve been through, my life motto is that I want to live, truly live my life, not just survive.
Behind the Rare (About Me)
I am a passionate writer, student, Girl Guide, volunteer, advocate for diversity and inclusion, patient advocate, and a lover of travel. I dream of becoming a genetic counsellor. I also happen to have 3 rare diseases. I am the rare wanderer. I refuse to let my conditions stop me from living my life the bestContinue reading “Behind the Rare (About Me)”
The Rare Wanderer 